Veds Life Expectancy Reddit. Jan 19, 2022 · The research was conducted in a mouse model, but s

Jan 19, 2022 · The research was conducted in a mouse model, but showed very promising results in life expectancy. But I get that your worried. In the long term I am more than happy to connect with you privately and help you get the ongoing care that you absolutely need if you hope to live a long life with this condition. Because the syndrome is associated with a shortened life expectancy and variable clinical presentation, diagnosis confirmed by genetic . While innovative technologies like gene editing and CRISPR-Cas9 have us optimistic for a vEDS cure, they are still in their infancy. I have hEDS and waiting on a vEDS diagnosis confirmation my dads had several major life threatening aortic aneurysms, aortic ulcerations, dissections, and resultant surgeries. The most severe subtype, vascular EDS (vEDS), involves fragile blood vessels and organs, which can lead to life-threatening ruptures. Apr 23, 2019 · Spontaneous arterial dissections, aneurysms, and/or ruptures are the most common complications, followed by gastrointestinal perforations 4, 6. More severe variants, such as the vascular type (vEDS), have garnered particular attention due to their significant implications for life expectancy. The hospital, which contains the French National Referral Center for Rare Vascular Diseases, has been treating vEDS patients with the following approach: Feb 28, 2023 · Method Sixteen HDCTv patients (vEDS = 9 and LDS = 7), 16 age and sex-matched hypermobile Ehlers-Danlos syndrome patients (hEDS) and 18 healthy subjects (HS), responded to self-questionnaires assessing psychosocial adjustment, quality of life (QoL), anxiety, depression, pain, fatigue and sleep problems.

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